Archived decisions
Care at the End of Life Project Plan
AIM |
OBJECTIVES |
PERSON RESPONSIBLE |
TIME | |
1. Develop unified model of care ensuring good practice is shared across Hampshire
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1.1 By geographical area identify (audit) the current models of care and current levels of service delivery |
Initial mapping of service provision. Consult project steering group on presentation of mapping information. Explore ICT options to ensure accessibility. Ongoing mapping of service provision and updating of database. |
Clare Hooke |
Achieved October 2007 November 2007 |
1.2 Draft and agree principles for this patient group |
Project Steering Group to consider adopting principles in the Department of Health operating framework 2007/08 PCT baseline review of services for end of life care |
Jacquie Swanston/ Jill Nother |
Achieved Jun 2007 | |
1.3 Ensure the current patient pathway (mapped across acute, community, social and the third sector) is understood |
Identify the current patient pathways for: Cancer Heart Failure COPD Neurological conditions |
Sue Damerell Kewell/ Jill Nother |
Sep 07 | |
1.4 Clarify the service delivery models by locality |
Undertake Department of Health baseline review of service |
Sue Damerell-Kewell |
Mar 08 |
1.5 Establish the gaps in this provision based upon service providers input |
Undertake Department of Health baseline review of service |
Sue Damerell-Kewell |
Mar 08 | |
1.6 Establish the gaps in this provision based on users (carers) feedback |
Undertake Department of Health baseline review of service |
Sue Damerell-Kewell |
Mar 08 | |
1.7 Develop a unified care model, building on the work of the HOSC review |
Undertake Department of Health baseline review of service |
Sue Damerell-Kewell |
Mar 08 | |
1.8 Map good practice locally and nationally |
Joint mapping undertaken by Health and Social Care |
Jane Pike |
Mar 08 | |
1.9 Identify future potential schemes based on good practice locally and nationally |
Potential schemes identified jointly by Health and Social Care |
Jane Pike |
Mar 08 | |
1.10 Re-assess the gaps in service provision based on new model |
Undertake Department of Health baseline review of service |
Sue Damerell-Kewell |
Mar 08 | |
1.11 Address variation in service provision and agree core range of services to patients and carers to be provided by the statutory sector |
Undertake Department of Health baseline review of service |
Sue Damerell-Kewell |
1.12 Development of a users' pathway to help direct users, carers and providers through the services |
Undertake Department of Health baseline review of service |
Sue Damerell-Kewell |
Mar 08 | |
1.13.1 Ensure 24/7 health and social care support is consistent and accessible to people requiring care in their own homes |
Address variation in service provision and agree core range of services to patients and carers to be provided by the statutory sector |
Elizabeth Emms/ Clare Hooke |
Apr 08 | |
1.14 Ensure all patients at the end of their life have a key worker identified |
Adapt National Framework documentation due 1 October 200. |
Clare Hooke/Elizabeth Emms |
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2. To develop a joint commissioning plan appropriately resourced |
2.1 Identify PCT current spending levels |
Undertake a population needs analysis Identify level of spend on Hospice and Specialist Palliative Care Services across Hampshire |
Public Health John Belden |
Aug 07 Aug 07 |
2.2 Develop interim best practice guidelines |
Utilise commissioning section in the awaited DH National EOL strategy. |
Sue Damerell-Kewell/ Clare Hooke |
Feb 08 |
2.3 Develop a commissioning plan for this patient group linked to national guidelines |
Utilise commissioning section in the awaited National EOL strategy. |
Sue Damerell-Kewell/ Clare Hooke |
Feb 08 Interim Planning ongoing | |
3. Develop proposals for joint management arrangements, pooled budgets, joint training and workforce development |
3.1 Establish joint project management arrangements |
Hold initial discussions between health and social care |
Yvonne LeBrun/Richard Ellis |
Achieved Sep 07 |
3.2 Map current training provision and spend across health, social care, voluntary and independent sectors |
Hold initial discussions between health and social care to develop a single training programme in palliative care. Joint Steering Group established. Map current training identify duplication. |
Lesley Atherton/Tracey Williams/Maria Hayward/Janice Gabriel |
Sep 07 Oct 07 Oct 07 | |
3.3 Agree training principles for prioritising staff training needs |
Hold initial discussions between health and social care to develop a single training programme in palliative care. Joint Steering Group established. Joint Training principles agreed. |
Ann Gunner/Tracey Williams/Maria Hayward/Janice Gabriel |
Sep 07 Oct 07 Nov 07 |
3.4 Deliver a joint training programme to ensure consistency across all agencies in Hampshire |
Hold initial discussions between health and social care to develop a single training programme in palliative care. Joint Steering Group established. Joint Training programme developed. |
Ann Gunner/Tracey Williams/Maria Hayward/Janice Gabriel |
Sep 07 Oct 07 Jan 08 | |
4. Single synchronised assessment process |
4.1 Develop a consistent county wide approach to continuing care assessment responsive to the needs of the patients at the end of life and their carer |
Agree a joint assessment protocol for adults at end of life Link to national framework for Continuing Healthcare |
Paul Turner/ Clare Hooke |
Apr 08 |
4.2 Develop and agree assessment documentation for communicating the needs and wishes of dying patients across all agencies |
Implement the national screening and fast track documentation |
Jill Nother/ Zena May |
Apr 08 | |
4.3 Clarify HCC responsibilities for supporting patients and their families at end of life |
Agree HCC responsibilities to help patients and clients manage their care at EOL Link to National EOL Strategy and Guidance |
Clare Hooke |
Feb 08 | |
5. Ensure information about services and support available to patients who are in the last year or months of life is readily accessible in appropriate formats to formal carers, informal carers and patients |
5.1 Audit current information |
Rationalise and ensure consistent information available to patients and carers |
Elaine Rogers/Clare Hooke/Maria Milton/Kerry Wincott |
Jan 08 |
5.2 Ensure access to specialist palliative care advice and support is identified across all areas and effectively communicated to formal and informal carers, including those providing OOH services |
Rationalise and ensure consistent information for patients and carers Ensure information is shared with OOHs service providers Ensure information informs commissioning plans |
Elaine Rogers/Clare Hooke/Maria Milton/Kerry Wincott Alex Berry/HCC Sue Damerell-Kewell/ Clare Hooke
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5.3 Develop a carers pack |
Pack developed and distributed |
Elaine Rogers/ Maria Milton/ Kerry Wincott |
Feb 08 | |
5.4 Develop a combined information pack for users and carers |
Pack developed and distributed |
Elaine Rogers/ Clare Hooke/Maria Milton/ Kerry Wincott |
Apr 08 | |
6. To ensure specialist equipment is available in a timely fashion for patients at the end of life |
6.1 Link to existing Steering Group taking this work forward |
Equipment services readily available to support patients at end of life |
Alex Berry/Richard Ellis/ MartinGarbett |
Oct 07 |
7. Ensure appropriate pharmacy support in and out of hours to ensure that the needs of patients in their homes or other community settings are responded to in a timely and appropriate manner |
7.1 Project Steering Group to obtain work completed by Central South Coast Care Network Palliative Care Group which has identified gaps in service provision |
Plan to meet shortfalls in service provision |
Diana Dunsford |
Jan 08 |
7.2 Make recommendations to ensure comprehensive provision |
Plan to meet shortfalls in service provision |
Diana Dunsford |
Jan 08 | |
7 Review the needs for specialist palliative care across all care settings to ensure that an appropriate level of service is commissioned and resourced to support people living in their own homes or the community and reduce avoidable admission to hospital. Use best practice in hospice services and other partnership working across Hampshire to inform this work |
8.1 Targets for admission avoidance agreed |
Joint commissioning plan for palliative care with agreed joint performance targets |
Alex Berry/Richard Ellis |
Apr 08 |
8.2 Monthly monitoring of targets |
Agreed monitoring framework and process for shared targets |
Alex Berry/Richard Ellis |
Apr 08 | |
8.3 Develop a culture of joint risk sharing with patients, carers and agencies |
Agreed protocols and mechanisms in place to help families/carers and agencies manage the final 24-48 hours in the community Agreed Care plan for the final 24-48 hours in the community Develop GSF and implement across Hampshire |
Paula Hull/Sue Kewell/HPCT -N/HCC/Hospice Paula Hull/Sue Kewell/Jaki Metcalf/HCC/ Hospice Jane Pike |
Apr 08 Apr 08 Apr 08 | |
8 Working with South Central Ambulance, Adult Services, hospice services, Nursing and Residential Homes and OOH services as appropriate, ensure clear protocols are in place to respond to patients requiring transfer who may be in the final stage of their illness. This shall include specific protocols to ensure that there is clarity about the resuscitation status of the patients and to avoid inappropriate interventions or admission to hospital. Mechanisms to communicate these protocols to GPs and other front line staff shall be identified |
9.1 Identify current protocols |
Agreed protocols and support mechanisms in place to help families/carers and agencies manage the final 24-48 hours in the community |
Paula Hull/Sue Kewell/HPCT -N/HCC/Hospice |
Apr 08 |
9.2 Develop a multi agency policy to ensure communication of resuscitation status and avoidance of inappropriate interventions |
Policy agreed and implemented and staff trained |
Zena May/HCC |
Jun 08 | |
9 Use as a resource the SHA audit of patients admitted from nursing homes to hospital at the end of their life which takes account of the appropriateness of admission and the wishes of the patient. Consider extending this audit to include patients admitted through the OOH and emergency services |
10.1 SHA to develop plans |
Sarah Smart |
Mar 08 | |
10 Obtain feedback from patients and carers about care at the end of life services |
11.1 Undertake Voices initiative |
Joint audit of patient/carer experience at end of life |
Customer Services Team/Maria Milton |
Mar 08 |
12 Clarify the way in which informal carers' assessments are requested, who conducts these and any timescales that support this process as well as the means by which client satisfaction is evaluated |
12.1 Department of Health guidelines awaited |
Develop carers packs. Seek feedback from Carers Strategy Group. Packs distributed. |
Elaine Rogers/ Maria Milton Kerry Wincotte |
Dec 08 Dec 08 Feb 08 |
13 HCC to publish a County wide policy setting out the support to be provided to informal carers to include arrangements for supporting patients and carers with social care needs where NHS continuing care is being provided. |
13.1 Carers information pack developed |
Pack developed and distributed |
Customer Services Team/Maria Milton |
Apr 08 |
13.2 Combined information pack for users and carers developed |
Pack developed and distributed |
Customer Services Team/Maria Milton |
Apr 07 | |
13 Hampshire PCT, in liaison with Hampshire County council, shall provide the HOSC with additional information about the support available to informal carers including: · Access to psychological and spiritual support · The range of respite provision through the NHS and County Council and how this is accessed · The lead professional for responding to informal carers' needs |
13.1 Develop clarity regarding carers assessments 13.2 Information to be included in Carers information packs |
Agree HCC responsibilities to help patients and clients manage their care Training programme on assessing carers needs and rights delivered. Pack developed and distributed Action plan developed as a result of voices audit |
Elaine Rogers/ Clare Hook Elaine Rogers/ Clare Hook |
Feb 08 Feb 08 Feb 08 Tbc |