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    Appendix 6: Review Update - Children's Neurosurgical Services

Aims:

To update the HOSCs on the review of children's neurosurgical services in England.

Author and Date:

Jeremy Glyde

Safe and Sustainable Programme Director

National Specialised Commissioning Team

8 March 2010

Introduction

There are currently 15 centres in England that are providers of paediatric neurosurgery (see Appendix A). The review is led by the National Specialised Commissioning Team (NSC Team) on behalf of the 10 Specialised Commissioning Groups. The review aims to identify potential models of care and develop a national strategy for England.

The Need for Change

The review was instigated at the request of members of the British Paediatric Neurosurgeons Group (BPNG) in view of the following concerns:

    · The surgical caseload across the 15 centres varies from around 50 to 700 cases each year; this may mean that some centres are not performing the critical mass of surgical procedures necessary to maintain specialist expertise

    · Incidence of children being operated on by surgeons who are not paediatric experts, but by adult surgeons who are `emergency competent' to operate on children

    · Only 3 out of 15 centres are able to provide a 24/7 paediatric service

Progress to Date

· A Steering Group has been established, chaired by Mr Paul Chumas, a Past President of the BPNG (see Appendix B for membership)

· Draft quality standards have been developed, providing a national quality framework for the future

· A working group has been established to identify potential models of care

· Stakeholders have been engaged, the outcome of which has fed into the development of the standards

Future milestones

In March 2010 each of the 15 centres will be asked to provide the NSC Team with detailed information on current service provision (including staffing, infrastructures and support services). The information template was developed in consultation with members of the BPNG and Society for British Neurological Surgeons (SBNS). Between April and May 2010 a former President of the SBNS will visit each of the centres to clarify issues around the information supplied.

A working group set up to identify potential models of care is expected to report by June 2010. The outcome of this work will assist the Steering Group in the development of a national strategy for England.

It is anticipated that the national strategy will be used as the basis for a review of current service provision, with recommendations for reconfiguration made in March 2011. Formal consultation would take place around April to June 2011.

Engagement with Stakeholders

In November 2009 a national stakeholder event was held, attended by 120 clinicians, professional association and parent groups. 90% of attendees said that the event was well organised, relevant and provided plenty of opportunity for debate. Video excerpts of the day are available on the NSC Team website (www.specialisedcommissioning.nhs,uk).

The NSC Team has issued a newsletter (February 2010) and has made available all relevant literature, including minutes of meeting, on its website.

The Steering Group has convened a group comprised of representatives of relevant parent groups to advise the Steering Group on relevant issues from a parent and patient perspective.

Engagement with Health Overview Scrutiny Committees

The NSC Team has been working with the Centre for Public Scrutiny (CPS) to keep HOSCs informed of progress. The CPS has circulated relevant literature to HOSCs via existing networks

In the summer of 2010 the NSC Team will, via the CPS, will ask HOSCs with an interest in this review to establish a statutory joint HOSC.

END

Appendix A

Current NHS providers of children's neurosurgical services in England

Newcastle General Hospital Newcastle

Leeds General infirmary Leeds

Hull Royal Infirmary Hull

Sheffield Children's Hospital Sheffield

Royal Manchester Children's Hospital Manchester

Alder Hey Children's Hospital Liverpool

Queens Medical Centre Nottingham

Birmingham Children's Hospital Birmingham

Addenbrookes Hospital Cambridge

Oxford John Radcliffe Hospital Oxford

Frenchay Hospital Bristol

Great Ormond Street Hospital for Children London

Kings College Hospital London

St George's Hospital London

Southampton General Hospital Southampton

Appendix B: Steering Group membership

Name

Constituency

Role

Mr Paul Chumas (Chair)

British Paediatric Neurosurgical Group

Consultant Paediatric Neurosurgeon, Leeds Teaching Hospital

Mr Eric Ballantyne

Scottish Health Service (Clinical Director for neurosurgery in Scotland)

Consultant Neurosurgeon, Dundee Teaching Hospitals

Currently Vacant

Lay representation (1)

Lay Chair of the Royal College of Surgeons Patient Liaison Group

Diana Cargill

Specialised Commissioning

Senior Commissioner for Adult & Paediatric Specialised Services, South West SCG

Dr Geoffrey Carroll

Health Commission Wales

Medical Director, Health Commission Wales

Steve Collins

National Specialised Commissioning

Deputy Director, Policy & Co-ordination

Kim Cox

Specialised Commissioning

Senior Commissioner, Yorkshire and the Humber SCG

Dr Helen Cross

British Paediatric Neurology Association

Paediatric Neurologist, Great Ormond Street Hospital

Jeremy Glyde

National Specialised Commissioning

Programme Manager

Mr William Harkness

British Paediatric Neurosurgical Group

Consultant Paediatric Neurosurgeon, Great Ormond Street Hospital for Children

Julie Hodson

Specialised Commissioning

Senior Specialised Commissioning Manager, South East Coast SCG

Barbara Howe

Specialised Commissioning

Director of Specialised Commissioning, London SCG

Robert Hughes

Lay representation (2)

Chairman, Anna's Hope

Dr Ian Jenkins

Paediatric Intensive Care Society

Consultant in Paediatric Anaesthesia and Intensive Care, Bristol Royal Hospital for Children

Roz Jones

Specialised Commissioning

Commissioner, North West SCG

Dr Tom Kenny

Public Health

Specialist Registrar in Public Health, Dorset PCT

Ian Langfield

Health Commission Wales

Commissioner, Health Commission Wales

Mr Conor Mallucci

British Paediatric Neurosurgical Group

Consultant Paediatric Neurosurgeon, Alder Hey Children's Hospital

Fiona Maxwell

Scottish Health Service

Network Manager, Scottish Managed Service Network

Lindy May

Nursing

Nurse, Great Ormond Street Hospital

Mr John McMullan

British Paediatric Neurosurgical Group

Consultant Paediatric Neurosurgeon, Sheffield Children's Hospital

Dr Antony Michalski

Children's Cancer and Leukaemia Group (CNS tumours)

Consultant Paediatric Oncologist, Great Ormond Street Hospital

Dr Kevin Morris

Paediatric Intensive Care Society

Consultant Intensivist, Birmingham Children's Hospital

Teresa Moss

National Specialised Commissioning

Director, National Specialised Commissioning Team

Dr Jan Poloniecki

Medical Statistics

Medical Statistician, St George's Hospital / University of London

Mr Ian Pople

British Paediatric Neurosurgical Group and Chair of Standards Writing Group

Consultant Paediatric Neurosurgeon, Frenchay Hospital

Dr Brijender Rana

Public Health

Consultant in Public Health, South East Coast SCG

Mr Peter Richards

British Paediatric Neurosurgical Group

Consultant Paediatric Neurosurgeon, Oxford Radcliffe Hospital

Mr James Steers

British Paediatric Neurosurgical Group

Clinical Lead for Re-provision of Clinical Neurosciences, Royal Hospital for Sick Children Edinburgh

Mr Dominic Thompson

British Paediatric Neurosurgical Group

Consultant Paediatric Neurosurgeon, Great Ormond Street Hospital for Children

Mr Philip Van Hille

Society British Neurological Surgeons

Consultant Paediatric Neurosurgeon, Leeds Teaching Hospital

Dr Edward Wozniak

Department of Health

Paediatric Adviser, Department of Health

Dr Amber Young

Anaesthetists

Consultant Anaesthetist, North Bristol NHS Trust

Vacant (as at June 2009)

Northern Ireland Health Service